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Chat Rooms (virtual support meetings) Message Boards Support Resources

Learning you or a family member has cancer can be an overwhelming experience that leaves one with many questions about what to do next and how to adjust to the diagnosis. It can help an individual to talk to people who are going through the same challenges. The following websites link to either chat groups or message boards where patients with cancer and their family members can communicate and seek support throughout the process. The chat rooms may meet the needs of patients who want to be actively involved in a conversation between patients. Many of the chat rooms have virtual support group meetings at designated times, so you may want to note what day and time patients will be signing on. Patients who prefer to write questions/comments may want to link to the message boards, and although there is not an interactive conversation, patients can write and check for responses at a time that is convenient for them. Listed below are links to chat rooms or message boards that serve as support groups for patients with a variety of different cancers, as well as patients who have a genetic predisposition to cancer.

Breast Cancer

FORCE: Facing Our Risk of Cancer Empowered

This website has both chat rooms and message boards available to patients. This website offers support for women who have been diagnosed with breast and/or ovarian cancer. Furthermore, this website provides support groups for women who do not have cancer but are at high risk for breast and ovarian cancer (previvors). Currently, the chat support group meets at the following times: Mondays at 10:00 pm EST for previvors, Wednesdays at 9:30 pm open to all, and Thursdays at 9:00 pm open to all.

Breast Cancer Support

This website links directly to the webpage to access the breast cancer support chat room. This chat group is for patients with breast cancer and survivors of breast cancer; it enables them to communicate and share their experiences with one another. The chat support group is available 24 hours a day, 7 days a week, but it is most active in the evening starting around 8:30 pm EST.

To introduce yourself to this website, first enter the Meeting Place for Survivors and from there, one can access the homepage to link to the other message boards.

Friends in Need: A Support and Chat forum for Breast Cancer

The following link connects to a breast cancer support chat room that may be helpful and supportive for anyone who is involved in breast cancer. The chat room is available 24 hours a day, 7 days a week, but it has a weekly meeting at 8:30 pm EST on Wednesdays.

Living Beyond Breast Cancer

This link connects to a website containing a number of message boards for patients with breast cancer and their families. Patients with breast cancer can ask questions, leave comments, stories, and poetry. Topics of the message boards include: Young Survivor Connection, Women living with Metastastic Disease, and a forum for all patients with breast cancer.

Sharsheret: Linking Young Jewish Women In Their Fight Against Breast Cancer

Sharsheret is a national organization of cancer survivors dedicated to the unique concerns of young Jewish women facing breast cancer. This organization provides information to patients and many distinct services such as the Link program which connects young Jewish women facing breast cancer to volunteers who are available to share their own breast cancer experiences. Sharsheret hosts education and outreach programs, has a Sharsheret Update newsletter, and message boards available.

Cowdens Syndrome

This web site has been formed to provide communication between patients and family members of rare genetic diseases ,Cowdens Syndrome, and Bannayan Riley Ruvalcaba Syndrome. Both diseases are caused by mutations of the PTEN gene. To join this group, you must have Cowdens Syndrome, Bannayan Riley Ruvalcaba Syndrome or be a family member to someone with one of these diseases. We also welcome medical professionals. This group has medical advisors which are the premier researchers in both diseases. Researchers are currently conducting present and future studies in PTEN diseases.

Colorectal Cancer

Colon Cancer Alliance: The Voice of Survivors

Colon Cancer Alliance offers a peer support chat group where patients with colon cancer can discuss their experiences with cancer from diagnosis to treatment. Patients and family members interested in participating in the chat room need to register by entering their email address. The link provided connects to the support group chat schedule and below the schedule is the link to the chat room. There are designated times for support meetings that cover various topics, including living with colorectal cancer and grief support.

Colon Club

This website has information available for young colon cancer patients and families. On the website there are links to resources and message boards so that patients with similar experiences can share their stories.

Gastric Cancer

HDGC: Hereditary Diffuse Gastric Cancer

This is a Yahoo! message board where patients with hereditary gastric cancer can discuss their health concerns and questions.

All Cancers

American Cancer Society: The Cancer Survivors Network

The American Cancer Society website has message boards available for most types of cancers. Thus, patients who are suffering from some of the rarer forms of cancer can contact other patients who are undergoing similar experiences. There are also chat support groups for patients accessible on this website. To enter these chat groups, one must register with the Cancer Survivors Network.

CancerSociety.com

The following website links to a number of message boards where patients can ask questions, discuss their experiences, and seek support from patients and family members who have gone through similar challenges. Message boards cover topics including breast cancer, ovarian cancer, FAP/Gardner Syndrome, and many other cancers.

Re-mission.net

This website links to a community for teens and young adults with cancer. Patients can discuss their experiences through message boards and personal blogs. The website also features a Re-mission video game that takes a player on a journey through the bodies of young patients with different kinds of cancer.

Teens Living with Cowden Syndrome

Teens Living with Cowden Syndrome is a new online support resource for teenagers with Cowden syndrome or Bannayan-Riley-Ruvalcaba syndrome (BRR). Members can create forums for discussion. They can also create their own blogs, add photos, play games and more! The goal of this support resource is to connect as many teens with Cowden syndrome / BRR as possible worldwide.